Potentia Public Policy Institute

Strengthening Disability Supports through Evidence-Based Policy

We advance equitable public policies that build stronger support systems across the lifespan, promoting optimal health, well-being, and quality of life for individuals with disabilities.

Strategic Value

200+
Years Sector Experience
100%
Person-Centered Focus

"Fiscally responsible, and results-driven systemic change."

Empowering Stakeholders Across the Continuum

State Governments Medicaid Agencies Advocacy Organizations HCBS Providers Individuals with Disabilities Families & Caregivers Interdisciplinary Teams State Governments Medicaid Agencies Advocacy Organizations HCBS Providers Individuals with Disabilities Families & Caregivers Interdisciplinary Teams

The Challenge & The Mission

Building Inclusive, Person-Centered Communities

The public policy landscape surrounding disability services is intricate. Finding the balance between high-quality support structures, Medicaid financing compliance, and long-term sustainability is a monumental task for any organization or government entity.


Potentia provides independent research, targeted systems-change strategies, and specialized training to public and private organizations. We empower you to navigate these complexities and drive transformative, sustainable results.

True reform begins with actionable intelligence.

Policy and Regulatory Work

What We Offer

Our Strategic Initiatives

Actionable intelligence and targeted assistance for policymakers and advocacy organizations.

Rate Setting & Finance

Utilizing the highly effective Brick Method™ created by John Villegas-Grubbs, our specialists strictly align state funding with service standards to ensure financial sustainability and high-quality outcomes.

Financial Strategy

Legislative Analysis

We break down complex public policy, state regulations, and pending legislation, delivering clear, evidence-based options for reform to advocacy organizations and state governments.

Research

Training & T.A.

Our Solution Specialists provide hands-on training to organizational teams, interdisciplinary professionals, individuals with disabilities, and their families, ensuring systemic changes take root.

Education
C. Thomas Cook

Leadership Spotlight

C. Thomas Cook

Board President & Lead Solutions Specialist

Thomas Cook brings unparalleled expertise to the Potentia Public Policy Institute. His distinguished background spans direct support, operational management, and specialized policy consulting for individuals with intellectual and developmental disabilities (I/DD).

During his career, Thomas has helped shape legislation resulting in $100M+ in combined state and federal funding for I/DD services, increasing the Delaware state I/DD agency's budget by 60%; worked with legislators, state agencies, and provider networks to improve access to addiction treatment and community-based services for people with disabilities; and designed an innovative approach to support home ownership for people with disabilities, among his other accomplishments.

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Strategic Relations

Ready to explore how Potentia can empower your organization or state agency to enact meaningful policy changes? Reach out to our team to begin the conversation.

C. Thomas Cook speaking on a panel discussion at an ACCSES conference

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Leadership Through Transition

C. Thomas Cook, M.A., S.Psy.S., Board President, Potentia Public Policy Institute

Leadership transitions can create uncertainty at precisely the time an organization needs stability, clarity, and forward movement. Potentia Public Policy Institute provides interim executive leadership to organizations serving people with intellectual and developmental disabilities, behavioral health needs, and other human-service populations.

C. Thomas Cook, Potentia's founder and Board President, is available to serve as an Interim CEO or Executive Director while an organization conducts a permanent executive search, responds to organizational challenges, or prepares for its next stage of development. He brings more than four decades of experience in disability and human services, including more than 25 years in senior executive leadership.

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By the Numbers

Executive Leadership at a Glance

450
Employees in multi-state operations
$20M
Annual regional revenue responsibility
60%
Increase in Delaware state fiscal support for I/DD services over five years
40+ Yrs
Leadership and service in the disability and human-services field

Recognized with the 2026 ACCSES President's Award for ten years of "trusted counsel," a 2025 Marquis Who's Who inclusion, a 2024 tribute from the Delaware House of Representatives, and the 2019 ACCSES Advocate of the Year Award.

How Interim Leadership Works

Grounded in Operations and Strategy

An interim executive should do more than keep the CEO's chair occupied. Mr. Cook's approach begins with listening to the Board, leadership team, employees, people receiving services and their families, and key community and government partners, to understand what is working, identify what requires immediate attention, and establish priorities that maintain organizational stability while positioning the permanent CEO for success.


As Regional Director for Dungarvin, Mr. Cook led multi-state operations across Delaware, Illinois, New Jersey, and Wisconsin, overseeing approximately 450 employees while regional revenue grew from roughly $16 million to $20 million annually. He later served as Executive Director of statewide disability provider associations in Wisconsin and Delaware, and, most recently, as Executive Director of the San Gabriel Valley Residential Facility in California. There, he maintained continuity of services through Board leadership changes, staff vacancies, regulatory challenges, and multiple concurrent organizational pressures.

An Interim Leader Who Understands the Environment

Fluent in Medicaid, Regulation, and Public Policy

Organizations serving people with disabilities operate within an increasingly complicated environment of Medicaid financing, workforce shortages, regulatory requirements, and changing service models. As Executive Director of the Ability Network of Delaware, Mr. Cook led a multi-year legislative and budget strategy that helped produce a 60 percent increase in state fiscal support for I/DD services over five years, securing $42 million in additional state appropriations and $59 million in federal matching funds.


He currently chairs the ACCSES Advisory Council and advises disability provider associations confronting Medicaid reimbursement, workforce, provider-capacity, and system-transformation challenges. That background gives him an understanding of both sides of the relationship between government and providers: the fiscal and regulatory responsibilities of public agencies, and the operational realities organizations face translating public policy into quality services.

Developing the Team, Not Replacing It

A Leadership Philosophy Built to Outlast the Assignment

Mr. Cook believes one of the most important responsibilities of an interim executive is to strengthen the organization that will remain after the interim assignment ends. His approach is straightforward: listen first, establish direction, put capable people in the right roles, give them meaningful authority, and create accountability for results. This means identifying the knowledge and talent already within an organization rather than assuming existing leadership must be replaced.

The objective is not to make an organization dependent upon its interim executive. It is to leave the organization stronger, more focused, and better prepared for its next leader.

When It Helps Most

Strategic Leadership During Periods of Change

Interim leadership can be particularly valuable when an organization is:

  • Conducting a CEO or Executive Director search following a retirement or departure
  • Managing an unexpected executive vacancy
  • Experiencing Board or senior leadership transition
  • Facing financial, regulatory, compliance, or operational challenges
  • Preparing for organizational restructuring or strategic planning
  • Managing significant changes in Medicaid reimbursement or public policy
  • Seeking to strengthen relationships with government agencies, legislators, funders, or community partners
  • Developing or strengthening its senior leadership team
  • Needing experienced executive leadership without prematurely committing to a permanent hire

Engagement Scope

What Potentia Can Provide

Interim engagements can be structured around the needs of the organization and its Board. Depending upon the assignment, Mr. Cook can provide day-to-day executive leadership together with focused assistance in areas such as:

Board & Governance Support Financial & Operational Oversight Strategic Planning Leadership Team Development Succession Planning Medicaid & HCBS Strategy Regulatory & Compliance Response Government & Community Relations Organizational Assessment Program Development Stakeholder Engagement Public Policy & Advocacy

Each engagement begins with listening and assessment, followed by agreement with the Board on priorities, authority, expected outcomes, and the work that should be accomplished before a permanent executive assumes leadership.

Experienced Leadership. A Stronger Transition.

Measured by What Happens After

Potentia's goal is to provide the stability an organization needs today while strengthening its leadership, operations, relationships, and strategic direction for tomorrow. To discuss an interim CEO, Executive Director, or transition leadership engagement, contact Potentia Public Policy Institute.

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C. Thomas Cook

C. Thomas Cook

Board President & Lead Solutions Specialist

Thomas Cook has worked in direct support, operational, policy/design, and consulting roles in services for people with disabilities. He previously served as the executive director of the Ability Network of Delaware, successfully advocating for vital legislative funding.

His deep expertise in Medicaid rate-setting, systems-change implementation, and independent research empowers organizations across the nation to adopt fiscally responsible, high-impact strategies.

John Foote

John Foote

Board Member — Behavioral Support & IDD Consultation

With over 30 years of experience in employment, workforce development, and advocacy for people with disabilities, John is a strategic thinker, skilled networker, and proven community bridge builder committed to not-for-profit transformation and systemic policy change.

John specializes in behavioral support consultation and individualized service design for adults with intellectual and developmental disabilities (IDD), with particular expertise in community integration and deinstitutionalization transition planning — providing consultation to organizations across the United States and Canada.

Patricia Dowse

Patricia Dowse

Board Member — Workforce Development & Disability Employment

Patricia brings more than 30 years of hands-on expertise in employment advocacy, workforce skill training, and systems-change leadership for people with disabilities. A strategic thinker and accomplished networker, she has cultivated deep connections with businesses, technology companies, and national and state policy leaders.

Her work centers on forging innovative pathways to employment — partnering with disability rehabilitation providers, educators, and workforce development teams to ensure individuals with disabilities are active, employed, and fully engaged in the workforce.

Roger Deshaies

Roger Deshaies

Senior Consultant

Roger is a seasoned policy analyst and Medicaid strategy expert with more than seven years of leadership across JVGA and Associates and Deshaies Consulting. His work focuses on driving impactful social service transformation through evidence-based policy analysis, streamlined processes, and sustainable organizational growth.

Known for his ability to cultivate lasting partnerships and realign organizational focus, Roger ensures that complex policy initiatives are transitioned effectively — delivering long-term operational improvements for the agencies and communities he serves.

Steve Kashdan

Steve Kashdan

Solutions Specialist

Steve Kashdan holds an M.A. in Education and Human Development, with a concentration in Rehabilitation Counseling, from The George Washington University. During more than 45 years in the helping professions, he has provided direct support in institutional and community settings, managed day and residential programs for people with disabilities, and worked with government agencies to advance community integration. He later taught Human Services at Trident Technical College and continues to teach remotely as an adjunct instructor in Wisconsin. Steve also served in several leadership positions with the National Organization for Human Services, including two years as its Managing Director.

Now living in Northeast Wisconsin, Steve teaches fitness classes at the Fox Valley and Oshkosh YMCAs and leads guided meditation groups. His freelance writing draws upon his experience caring with his wife for his elderly mother until her death in November 2024, as well as his emerging interest in poetry and his continuing spiritual journey. Steve’s life and work reflect his deep belief in the human spirit and its innate striving for community, peace, and goodness.

Technology Meets Policy

The EHR Digital Health Overlay

aSuggestion for Wellness & Care is an EHR-agnostic Digital Health Overlay designed to sit seamlessly on top of existing provider systems (such as Therap, iCareManager, or others). Built with a Zero-PHI architecture, aSuggestion transforms daily routines into interactive, active treatment while capturing real-time, audit-ready compliance data, without requiring a costly, disruptive software migration.

Bridging Policy, Rates, and Practice

Addressing Industry Challenges

Potentia Policy Institute and aSuggestion join forces to bridge the gap between state Medicaid policy, rate-setting realities, and day-to-day service delivery:

DSP Retention & Labor Stabilization

Inadequate reimbursement rates and administrative overload drive historic Direct Support Professional (DSP) turnover. aSuggestion's Guided Notes, on-demand shift activities, and automated time-logging reduce administrative fatigue, keeping DSPs focused on care rather than paperwork.

Audit-Proof Revenue Protection

Rate adequacy only protects an agency if revenue is safe from clawbacks. Real-time field capture for Community-Based Outings (CBOs), Visit Trac (EVV), and automated Person-Centered Goal (PCG) cross walking ensure 100% compliance during state Medicaid audits.

Empirical Policy & Rate Modeling

Potentia's policy analysis and Brick™ Method rate studies gain a powerful field-data companion. Aggregated, de-identified engagement metrics provide policymakers and agency executives with clear evidence of actual service delivery standards, costs, and outcomes.

Scalable Technology-Enabled Care

Facing tight fiscal environments and long waitlists, combining Potentia's technical assistance with aSuggestion's remote Check-In Chats (CICt) and interactive skill tools allows agencies to expand service capacity safely.

The Bottom Line

Strengthen Your Agency's Operational & Financial Health

Learn how the aSuggestion Digital Health Overlay elevates daily program engagement while protecting your organization's workforce and operating margins.

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Partner Spotlight

About aSuggestion's Founder

Greg D. Wilson

Greg D. Wilson

Founder & CEO, aSuggestion for Wellness & Care

Greg D. Wilson is the Founder and CEO of aSuggestion for Wellness & Care, a private digital health overlay designed to support individuals with autism spectrum disorder, intellectual and developmental disabilities, and co-occurring behavioral health challenges. aSuggestion partners with public and private agencies to extend their service reach through a safe, moderated community environment, human-facilitated peer connection, and proprietary skill-building content.

Greg brings a background in secure digital community architecture and, in partnership with Potentia Policy, a deep commitment to building technology that meets the real-world needs of the individuals, families, and care teams.

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Why It Matters

Prevention Is the Only Sustainable Strategy

Across the country, abuse and neglect in I/DD services reflect systemic weaknesses in prevention and reporting, not isolated incidents. A joint federal review found that group homes failed to report a majority of critical incidents to law enforcement or state agencies as required. A 2018 FiveThirtyEight investigation identified at least 2,400 allegations of abuse and neglect across more than 2,000 unlicensed California adult day programs, and licensed facilities have been repeatedly cited under Title 22 for personal-rights violations, supervision failures, and failure to report.


Once harm occurs, organizations face steep consequences: multi-million-dollar verdicts, insurance premium increases of 25% to 100% or more, reputational damage, and regulatory scrutiny. Prevention — not reaction — is the only strategy that protects the people served and stabilizes the organization.

Structured Training & Ethical Frameworks

Clear ethical standards, practical guidance for boundary-setting, and tools to recognize early warning signs of abuse or neglect, delivered as ongoing, scenario-based training rather than a one-time compliance exercise.

Supervision & Accountability

Guidance on staff-to-client ratios, monitoring high-risk situations such as transportation and personal care, and building regular performance and compliance reviews into daily operations.

Transparent Reporting Systems

Clear escalation pathways and a culture that encourages staff to report concerns without fear of retaliation, so warning signs surface before harm occurs.

The Certification

Abuse Prevention & Ethics Train-the-Trainer Certification Workshop

Sponsored by the Potentia Public Policy Institute, this certification workshop equips organizations with internal trainers who can sustain prevention efforts, embed ethical decision-making into daily practice, and strengthen organizational culture around safety and accountability. Participants train using Potentia's Preventing the Maltreatment of Vulnerable Individuals employee training booklet (California Edition), covering mandated reporting requirements, recognizing abuse, neglect, mistreatment, and financial abuse, and building program-level abuse prevention plans.

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